Friday, February 25, 2011

Ouch!

Sorry I had to take a few days off. This port has proven to be the most painful aspect of this entire experience. Since "Shrek" is the soundtrack of our lives, I keep thinking of the 1st movie when Shrek has an arrow in his butt and Fiona yanks it out when he doesn't expect it and he jumps and says "ouch!"

We had a great play day Monday! There were 11 kids here under the age of 7! The kids had a blast, but I think the moms got worn out :) It was nice to see everyone!

Tuesday I rested most of the day and got to see my sister in the evening. Wednesday the port was put in and my friends cleaned for us. Thursday, I got to have a movie date with Beth, see Jen, visit with Aunt Cass who brought me lunch AND fixed a super yummy beef and noodles dinner, and see the Wilson laundry crew! Whew! I guess I didn't really take a few days off, I just didn't get to any correspondence!

They say this port will be totally worth it and will be unnoticeable once it heals. I hope they're right!

Wednesday, February 23, 2011

Port is in

We are home from the hospital, with Lisa resting.  The procedure went smoothly, the port is in place.  She is in a bit of pain from the incision, but rest and medicine are taking care of that.

We came home to a flurry of activity, several of Lisa's teacher friends came over to clean, which is a wonderful help!

Things are settling down now, getting ready to feed the kids dinner.  Just wanted to let everyone know things are going well.

Sunday, February 20, 2011

Calling All Vendors!

We will be having a fundraiser!

Wilson School Gym
900 Koch St.
Saturday, March 19th, 10am-3pm
$25 per table (profits are yours to keep)

If you or someone you know would like to participate, please email me your name, the number of tables you would like, and the type of product you would like to sell.

tiggertwo@hotmail.com

Thursday, February 17, 2011

Dr. Results

So we went to the Dr. today to review the results of yesterday's post-chemo blood work. The Dr. and nurse practitioner both met with me and were happy with my report. The blood work showed that all blood counts and kidney function are in the normal range. I worried that might mean it's not working. Doc assured me that is not the case. Apparently, they have also been wondering how someone in my situation would respond to chemo. It's not often they treat "young, healthy" patients. The blood work tells them that my bone marrow is strong enough to repair itself from the chemo. That, of course, is the goal. Kill the cancer cells, let the healthy cells regenerate.

She also suggested I stop taking the anti-nausea meds regularly and just take them as needed. I think I took 1 today. Maybe 2. They have scheduled an appointment for me to receive a port which would mean fewer needle sticks, and my next chemo is scheduled for March 3rd. All good news!

I am still very tired. Today I took 2 naps. Both sleeping for a few hours. Sometimes I just rest and have quiet time, but today I slept. Doc says that will pass. Right now I have an overlap of radiation and chemo and I'm coming off the steroid. In a few days, the tiredness should improve. I won't doubt her because I have such awesome prayer warriors and an incredible support network!

Please continue to pray for my family and their health. They have a tendency to put me first and neglect their own need for rest or a dr. visit. We are also lining up a number of fundraisers so you can pray for favor and smoothness of planning. (is that even a proper phrase?)
Praise God for all the results being so positive and all the support I have. When we arrived at the clinic today, a taxi was waiting while someone received their treatment. It made me so sad that there are people who have no support network to even get a ride to treatments! We have been so blessed!

Tuesday, February 15, 2011

Tough Day

I think today was it. I still have not had any nausea, but I was so tired I did not think I would be able to get out of bed. Of course, today was the day I had morning appointments and a lot of plans! Once I got up and moving, I became convinced I wouldn't make it through the day. Then I went outside. What a beautiful day! The fresh air helped me get going and the rest fell into place.
Dad was my driver for the day. We took the kids to the salon for haircuts. Miss Andrea always treats us well! Chloe got to go to school with pink and green hair gel and Levi looks like a handsome little man! Then we had to go for a chemo follow up blood draw at Pekin Hospital. I had not planned on taking the kids with us, but it took me too long to get out of the house so they had to go along. Of course, they were "unusually busy" today and we had a bit of a wait. The good news: they got me on the first stick! That almost NEVER happens! By the time we finished there it was almost time for Chloe to be at school, but she needed lunch. McDonald's! We called Mrs. Janssen and let her know Chloe would be a few minutes late and had some McD's before dropping both kids off where they belonged. We ran into some friends there on their lunch break and got some great hugs and smiles. Then dad dropped me off for a nap. Chad was still home. Turns out he wasn't feeling so well either :(
I rested until 3 then had a string of visitors. Shelly brought by the proceeds from the Valentine silent auction, Dave brought by some baklava he had saved for us, and Nikki stopped by now that she is well again.
Sue and Gregg arrived around 5 with dinner for the kids so we could go on our special date. We went to 309 at Junction City. It was a lovely dinner. On the way, I got a call from my sister. Today was a special day for her. I am sad that I missed it, but so proud of her! She won an award from the Y for Women in Leadership. It is an honor to be nominated, and she won! So on the way to dinner we got to hear all about it. The restaurant was nice and the food was good. We ended up with way more than we could eat! Their portions were very generous. It is always nice to get to have grown up time and eat a meal that is still hot! When we got home, Gregg was finishing putting up handrails on our stairs (yeah!) and the kids were playing with Sue. They had a great time so there was none of that parent guilt about leaving them :)
So... I guess my tough day turned out to be OK after all. I think if that kind of tiredness a few days after chemo is the worst I have to deal with then I can't really complain, I get nervous that maybe it's not working because I'm not "sick", but I have been assured that the meds are just that good. I guess we'll find out at our appointment tomorrow!

Saturday, February 12, 2011

Playdate

Chemo has been tolerable so far. I spent much of yesterday in bed sleeping. I was able to eat a wonderful homemade meal delivered by Cheryl. I am taking anti-nausea pills every 4 hours and they seem to be working well. No vomitting. The fatigue has been much harder. There isn't much we can do to fight it except rest.

Today, Ry had arranged a sledding family adventure. We weren't able to go at 10 as planned, but we were still able to go later and had a blast! It was a perfect set up! We went to Victory Acres off of Cameron Lane. Ry's work buddy let us borrow a 4 wheeler! We could ride the sleds and intertube down the hill and use the 4 wheeler to get back up! Chloe went down by herself! She crashed at the end of each trip and just got right back on and finished down the hill! Stac, Noah, Isaac, Ry, Heather, Ryder, Dad, Chad, Chloe and I all sledded. I wore out before everyone else, so Heather took me back to her house with Ryder and we had snacks. When everyone else was done, we had pizza hut. It was a great day! I hope you all make time for some fun family adventures too! Tell me all about them!

Thursday, February 10, 2011

From the Pit

I am one-handed blogging from my recliner in the chemo treatment room. Things have gone fine, but the actual iv in my veins didn't start until after noon so I will likely be here until supper time. Chad and Ry are both here with me so they can take turns if they need to. Right now there is enough space that they can both be back here with me. The daunting thing for me is sitting here for so long! Thank God for ipads and wi-fi!

The test results we were waiting for came back. There was no mutation so the pill form of chemo will be reserved for 2nd line defense. We will have a follow up with Dr. Le-Lindqwister next week and she will set us up with an appt to get a port put in so there won't be a lot of needle sticks after today. The expectation is that the next 3 days will tell what my side effect will be and how severe. In 3 weeks, I will return here and do the same thing again. Then scans, then the 3rd round. Radiation will be checked by MRI on March 14th.

Have a great day! Do something that's not sitting in a chair for me!